What does the Centre for Developmental Disabilities Health do?
What sort of information does CDDH collect about patients seen in their clinics?
Prior to a visit to a CDDH clinician, the patient, or someone supporting them, is asked to complete a Pre-Appointment Questionnaire
This questionnaire asks for information about:
During the clinical appointment, other information required to provide health care to that person will be obtained. Information may also be sought from other people providing health or other services important to the person’s health care.
What happens to the information collected by CDDH about a patient?
Can a patient see the information collected about him/her by CDDH?
Yes, according to the Freedom of Information Act
If requested, a CDDH clinician will explain the information to the patient or someone acting on the patient’s behalf.
If there is a legal reason for not releasing certain information, a CDDH clinician will explain that reason.
If there is information in the file that is incorrect or in disagreement, the patient or person acting on his/her behalf can ask that it is corrected.
What does CDDH do with patient information?
The primary purpose of collecting and sharing relevant information about the person’s health issues is to support the person to achieve and maintain optimal health, function and wellbeing.
De-identified information may also be used for:
Will CDDH use or disclose the patient’s information for any other reasons?
Can information about a patient be used or disclosed for reasons other than those outlined here without that person’s consent?
What happens if the patient doesn’t want his/her information to be used for education or research activities?
What happens if a person is unable to give or refuse consent for uses and disclosure of his/her information?
What can a patient or his/her representative do if they have a complaint about the use or disclosure of the patient’s information?
For further information please go to “The Health Privacy Principles (esp. Privacy Principle 1.7)” at the Health Services Commission Website: